Photos by John Anderson
As a parent of an autistic kid, I am always looking for new ways to help my son integrate better into society and to learn important life skills he will need to survive. Parents can’t do it alone. While nobody else knows our kids like we do, having outside assistance from professionals is critical. They say it takes a village to raise a kid, but it takes a lot more than that to raise a special needs kid.
It is in fact a daunting task and while the CHEO Autism program is fantastic, the problem is there is a huge gap in services, especially if your child is older when diagnosed. There is a lot of support for kids who get the label young, but when you have a kid like Jacob who is complicated, diagnosed later in life and has a lot going on other than just autism, he is starting out of the gate late, especially when it comes to socialization skills. It is entirely sad and heartbreaking.
One man, John Anderson is changing the social landscape for autistic kids in Ottawa. He is the founder and Program Director of Spectrum Insights. In short, Spectrum Insights is an organization that provides one-on-one coaching and social integration training for autistic youth and adults alike. John is a caring, empathetic man who has been working with people on the spectrum since 1996.
He has worked with Jacob one-on-one for approximately two years, helping us work through certain behaviours, encouraging healthy social ones.
John will work with kids after school in a classroom-type setting, however, it is his excursions that are particularly helpful. “During my time working with youth, I found there were life skills that I was not able to teach during a personal coaching session in a classroom but could only be taught in the real world. I began to take my clients on social outings to better learn life skills.”
These are special times for Jacob, no question. John and Jacob have been to museums, malls, out for walks and doing great things. John has been very helpful especially because Jacob has not been in school.
Once a month, John hosts a social group for kids on the spectrum, where they can hang out, grab some grub (potluck), play games and talk to each other. As you might imagine, being a kid on the spectrum can be isolating. It is a safe environment for them, there are skilled, experienced staff on hand and organized activities. Jacob loves it and feels accepted among the group. It is a highlight of his month.
In addition to one-on-one and social group, John organizes summer camps. “I started a summer camp for my clients in 2012. The main focus is life skills and social skills. The goal is to teach them how to be more independent and how to interact socially in the world and with each other.”
Some of these skills he works on include things we all take for granted:
The summer camp is phenomenal and Jacob has gone for two summers for week-long day camps. He is around other kids doing normal things.
Spectrum Insights also has programs specifically for girls, organizes movie nights and even has hooked up with the Superstore in Orleans to offer cooking classes (another huge hit in my house) for youth.
John says that: “My current vision is to reach out to more teens, as I find many of them reach an age where there are fewer and fewer programs available for them. As they near adulthood, they outgrow school or are not able to attend due to their personal limitations and don’t have the social interaction other kids have.”
Spectrum Insights offers autistic teens a chance to be in a social group and social setting where they are among peers again and as Jacob meets other kids, it is evident that John is providing the chance to build lasting bonds of friendship.
That too is golden.
